Some of you know, many don’t, that I have another blog. I don’t write there very often… for so many reasons. Today I did. I’m sharing it here this time.
I’ve done a true disservice to this blog, to this topic, to readers, and to my own internal world, by avoiding writing about the realities of living with HD in our family. I started this blog to shine a light on a disease that has devastated our family, and so many others. I started it to find a space to share my struggle, as a family member who does not have Huntington’s Disease… as the “lucky one,” as so many people feel compelled to remind me. Lucky–– such a bitter word in my mouth, when it comes to the realities of HD. I started this blog to shine an unflinching light on so many aspects of this disease and the long, painful road families travels in living with HD.
But, I flinched.
I’ve flinched over and over and over again. I’ve flinched every time I try to explain what HD is…
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